Parents of children with the following conditions are wanted to provide support and information to others:

  • ATRX – Alpha-Thalassemia X-Linked Intellectual Disability Syndrome (a genetic disorder)
  • 18Q22.3 (a chromosomal disorder)


If you or someone you know are dealing with either of these conditions, you can make a major difference in someone else’s life. A few minutes of your time can help another family make it through.

If you can help, please contact Golda from the Beineinu organization:

Click here to learn more about the Beinenu organization in our Organizations Directory.

Check out our Guide for Children with Special Needs, as well as our All Rights Index (which is both searchable and browseable) for information on rights, services and entitlements.